Pediatric Palliative Care Coalition & PA Medical Home Initiative Conference

Celebrating the Past and Strengthening the
Future of Pediatric Palliative and Hospice Care

Friday, October 5, 2018 8:00 A.M. – 4:00 P.M. • Sheraton Harrisburg Hershey Hotel,
Harrisburg, PA

Featured Keynote Speakers:
Chris Feudtner, MD, PhD, FAAP, Children’s Hospital of Philadelphia
Carol May, RN, MSN, MBA, CHPPN, Children’s Hospital of Pittsburgh of UPMC

Registration Fees
Early Bird $125 (Sept 15) Regular $150

Register Now


Sheraton Harrisburg Hershey Hotel Reservations

PPCC has negotiated a $121 rate per room, single or double occupancy, at Sheraton Harrisburg Hershey Hotel, Harrisburg, PA. The number of rooms available at this rate are limited. To ensure this rate, valid through September 13, 2018, reservations should be made as soon as possible by calling 717.564.5511. Please mention Pediatric Palliative Care Coalition 2018 when making your reservation.


Sponsorship Opportunities

Levels: $1,500 – $10,000
Interested in sponsoring our conference?


Exhibitor Opportunities

Table: $350 (non-refundable)
Would you like to exhibit at our conference?


For more information, or to learn about sponsorship and exhibit opportunities,
please contact Betsy Hawley, Executive Director, at 412.963.8243 or betsy@ppcc-pa.org.

 

Agenda

7:00 a.m. – 8:00 a.m. Registration/Breakfast with Exhibitors


8:00 a.m. – 8:15 a.m. Welcome and Introductions

  • Betsy Hawley, MA
    Pediatric Palliative Care Coalition
  • Eileen Thompson, RN, BSN
    PA Medical Home Initiative

8:15 a.m. – 9:45 a.m. Keynote Session

Celebrating the Past and Strengthening the Future of Pediatric Palliative and Hospice Care
This year, marks the 10th anniversary of Pennsylvania’s Pediatric Palliative and Hospice Care Task Force Report. This session will describe how, when, and why the report was developed and if/how it has influenced the provision of pediatric palliative and hospice care in the state of Pennsylvania. This session will also describe the history and evolution of medical homes and how their growth was seemingly parallel to pediatric palliative care, but is now intersecting as both fields expand and grow.

  • Chris Feudtner, MD, PhD, MPH
    The Children’s Hospital of Philadelphia
  • Renée Turchi, MD, MPH
    PA Medical Home Initiative, St. Christopher’s Hospital for Children
  • Carol May, RN, MSN, MBA, CHPPN
    UPMC Children’s Hospital of Pittsburgh
  • Megan Murphy, MSW, MOT

9:45 a.m. – 10:15 a.m. Break with Exhibitors


10:15 a.m.– 11:30 a.m. Plenary Session

“It’s not time for THAT!”
Meeting the Resistance to Palliative and Hospice Care
Although the field of pediatric palliative and hospice care in the U.S. continues to grow, there are still misconceptions, barriers and resistance to this field of medicine. These misconceptions often interfere with the provision of optimal end-of-life care for those children and families in need. This session will help to uncover the myths and fears causing resistance to pediatric palliative care and will provide attendees with basic knowledge and tools to help facilitate better understanding of the value and worth of pediatric palliative and hospice care.

  • Joan Harrold, MD, MPH, FACP, FAAHPM
    Medical Director, Hospice and Community Care

11:30 a.m. – 12:15 p.m. Lunch/Exhibitors


12:15 p.m. – 1:15 p.m./ 1:15 p.m. – 2:15 p.m.

Concurrent Sessions: All three sessions will be offered twice.

A. Managing Pain and Symptoms in an Era of Emerging Therapies and Information Overload
This session will discuss challenges healthcare providers encounter in pro viding optimal pain and symptom management when patients and families are buffeted by information about new or unconventional therapies, such as medical marijuana, and concerning news stories, such as media attention about the opioid crisis.

  • Wynne Morrison, MD, MBE
    The Children’s Hospital of Philadelphia
  • Victoria K. Johnson, DO
    The Children’s Hospital of Philadelphia

B. Collaborating to Provide Optimal Pediatric Palliative and Hospice Care for Children with Medically Complex Care/Needs
This session will describe past, present, and future collaboration and advocacy efforts across the state of Pennsylvania to expand on the range and depth of pediatric palliative and hospice care for children with medically complex needs. This session will discuss case studies that will illustrate the challenges and rewards of utilizing available resources and care options in providing palliative/hospice care, ie., Palliative Care Teams, Medical Homes, Concurrent Care, and/or hospice.

  • Carol May, RN, MSN, MBA, CHPPN
    UPMC Children’s Hospital of Pittsburgh
  • Nicole Hahnlen, RN, CHPPN
    Penn State Children’s Hospital
  • LeeAnn Moore, RNC, BSN, CCM
    Highmark
  • Evalisa McClure, BSN, RN
    VITAS Healthcare

C. Having Difficult Conversations: Giving Serious News and Introducing Palliative and Hospice Care to Patients and Families
This session will discuss communication skills, techniques and resources/tools for delivering serious news and discussing palliative care and hospice options with patients and families.

  • Amanda Brown, MD
    UPMC Children’s Hospital of Pittsburgh

2:15 p.m. – 2:30 p.m. Break with Exhibitors and Refreshments


2:30 p.m. – 3:30 p.m. Closing Plenary Session

What Palliative and Hospice Care Meant to Us: Parent Panel
In this session we will ask our panel members questions regarding how palliative and/or hospice care helped to support their families while caring for their child with a life threatening/serious illness. Questions will focus on the degree of helpfulness in identifying goals, wishes, hopes and fears, symptom management, improving quality of life and support during end-of-life care.

  • Facilitator: Eileen Thompson, RN, BSN
    PA Medical Home Initiative

3:30 p.m. – 4:00 p.m. Closing Session

Reflections on the Day and Developing a Roadmap for the Future

  • Chris Feudtner, MD, PhD, MPH
    The Children’s Hospital of Philadelphia
  • Renée Turchi, MD, MPH
    PA Medical Home Initiative, St. Christopher’s Hospital for Children

NASW-PA Chapter is a co-sponsor of this workshop.
CEs for nurses and social workers will be awarded for completion of this course. NASW has been designated as a pre-approved provider of professional continuing education for social workers (Section 47.36), Marriage and Family Therapist (Section 48.36) and Professional Counselors (Section 49.36) by the PA State Board of Social Workers, Marriage and Family Therapists and Professional Counselors.

This activity has been approved for AMA PRA Category 1 Credit™.