Information & Resources
PPCC strives to provide comprehensive, up-to-date information on pediatric palliative care/hospice options, as well as support organizations and self-help groups in Pennsylvania and the country.
NEW! Annual Respite Community Forum & Resource Fair – Pittsburgh, PA: September 25, 2017 Are you a parent or family caregiver? Could you or someone you know use a break from caregiving? If so, come and learn about respite. Respite Forum and Fair 2017
Blog – Courageous Parents Network – So, how many kids do you have; Helping families answer the question: How many children do you have?
Article – Pittsburgh Post Gazette – Pittsburgh doctor shares struggles and privilege of treating dying children – 8/2017
Article – NY Times – For Kids with Cancer, Focusing on Quality of Life – 2017
Article – Time.com – How Repealing Obamacare Would Harm Chronically Ill Children 2017
The Palliative Care Provider’s Guide to Understanding Health Care Payment The Center to Advance Palliative Care (CAPC) presents the Payment Primer: What to Know about Payment for Palliative Care Delivery. The Primer is a free CAPC resource available to any program interested in payment but not sure where to start. It provides a basic foundation in health care payment insurance structures and quality metrics and offers ways to identify opportunities for payment improvement.
Courageous Parents Network – We are pleased to share these excellent resources from our friends at Courageous Parents Network.
Top 5 Videos of 2016 #1 Jessica, on being Rachel’s Big Sister; #2 Dr. Joanne Wolfe presents on Pediatric Palliative Care as a Social Issue; #3 Two SMA Type 1 Families. Two Paths. #4 When the time comes: The last hour of Talon’s life. #5 I wish there had been more support and fewer decisions at the beginning.
Online Resource – Students Coping with Grief & Loss at College – Expert Advice on Recognizing Symptoms of Grief, Accepting Loss & Getting Help http://www.accreditedschoolsonline.org/resources/managing-grief
Kinship Care in Pennsylvania: Support for Families with Grandparents and Other Kin Raising Children – This 18-page booklet discusses the concepts of kinship care, issues, support groups, programs, and resources for organizations working with kinship care families. To download the publication: grandparent-kinship-booklet
ChiPPS E-Journal E-Journals are produced by ChiPPS (the Children’s Project on Palliative/Hospice Services), a program of the National Hospice and Palliative Care Organization (NHPCO). For a complete list: CHiPPS E-Journals