PPCC strives to provide comprehensive, up-to-date information on pediatric palliative care/hospice options, as well as support organizations and self-help groups in Pennsylvania and the country.
ChiPPS E-Journal E-Journals are produced by ChiPPS (the Children’s Project on Palliative/Hospice Services), a program of the National Hospice and Palliative Care Organization (NHPCO). For a complete list: CHiPPS E-Journals
ChiPPS E-Journal #50: Celebrating the Past and the Future of Pediatric Palliative/Hospice Care This issue celebrates a milestone in the work of ChiPPS, in the ChiPPS E-Journal itself, and in the field of pediatric palliative and hospice care. Issue #50 is at least the size of a double issue and contains many very interesting articles ranging from the origins of ChiPPS and PPC to some estimates and hopes for future of this field.
Online Resources for Pediatric Patients
Discussions with families are particularly difficult when a child in involved. These resources can be helpful:
Advance Directive planning for pediatric patients:
*Voicing My Choices: A Planning Guide for Adolescents & Young Adults helps young people living with a serious illness communicate their preferences to friends, family and caregivers
*My Wishes is a booklet written in everyday language that helps children express how they want to be cared for in case they become seriously ill.
Additional information for pediatric patients and their caregivers:
*Pediatric eJournal – this free quarterly eJournal is produced by the NHPCO Pediatric Leadership Team. It is a fantastic go-to source for indepth coverage of timely topics.
*Care Plan Book – an handy resource for families to organize medical information
*Creative Therapies Toolkit (link to come)
*Pediatric Palliative Care Field Guide – a comprehensive catalog of resources, tools and training to promote Pediatric Palliative Care innovation, development and growth
*Courageous Parents Network has a tremendous library of videos and resources to help families navigate the many issues surrounding pediatric palliative and hospice care.
*Palliative Care for Children – Conversations Matter – Support for the Whole Family When Your Child is Living with a Serious Illness
*The Conversation Project or Conversation Starter – The Pediatric Starter Kit: Having the Conversation with Your Seriously Ill Child offers advice and provides stories from parents and palliative care specialists.