Video

PPCC: Who We Are and How We Can Help 

This video provides an overview of the Pediatric Palliative Care Coalition (PPCC) of PA and features Executive Director, Betsy Hawley, along with a parent who has benefited from PPCC offerings. (1:17)

 

PPCC: Pain and Symptom Management 

In this in-depth video, Carol May of Children’s Hospital of Pittsburgh of UPMC, presents and discusses the latest techniques to manage and control pain and symptoms in children with chronic and life-threatening illnesses. (1:30:33)


NEW! Podcast – When Children Need Palliative Care – Greater Illinois Pediatric Palliative Care Coalition brings this podcast to those looking for information about pediatric palliative care. (19:26)

Courageous Parents Network – PPCC is in partnership with Courageous Parents Network. We encourage you to visit their website and voluminous video library. To get started check out this video, What is pediatric palliative care, Really? (4:02)

Reframing Hope: Pediatric Palliative Care – When Maria Kefalas discovered that her 2-year-old daughter, Calliope, had leukodystrophy, there were not many options. Her healthy baby was suddenly suffering, and she learned the disease was fatal. There was only a small clinic of two doctors, and little information or research on the disease. Produced by the Calliope Joy Foundation. thecalliopejoyfoundation (6:07)

Portraits of Life Love Legacy Through Pediatric Palliative Care – In this film, families share stories of unthinkable journeys — caring for their own seriously ill or dying children. With open hearts, seven families discuss their close partnerships with the pediatric palliative care team to find love, joy, and purpose through the lives of these special children. (5:38)

On Being Present, Not Perfect – Elaine C. Meyer, Ph.D., R.N. discusses the  difficult conversations that often matter most in healthcare including conveying serious diagnoses and disclosing medical errors, to ethical quandaries surrounding end-of-life care. Dr. Meyer is an Associate Professor of Psychology and Director of the Institute for Professionalism & Ethical Practice – Children’s Hospital Boston and Harvard Medical School. (19:29)

NIH Makes Palliative Care More Attainable for Pediatric Patients and Their Families – A campaign by the National Institute of Nursing Research (NINR) aims to increase the use of palliative care for children with serious illness. Presented by Dr. Patricia A. Grady, NINR director. (5:09)