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3rd Annual Pediatric Palliative Care Coalition (PPCC) Conference Navigating Challenges in Pediatric Palliative and Hospice Care Thursday, October 5, 2017 Register Now $150 per person (After September 1, 2017) Conference Information Agenda Thursday, October 5, 2017 7:00 A.M. – 8:00 A.M. Registration/Breakfast with Exhibitors 8:00 A.M. – 8:15 A.M. Welcome and Introductions 8:15 A.M. – 9:30 A.M. Keynote Session Navigating Continue Reading...
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I Think My Child Needs In-Home Nursing… Now What?

I Think My Child Needs In-Home Nursing… Now What? By Elisabeth McNulty, Pediatric Family Support Specialist (Bayada) Having  a chronically ill child is hard. Really hard. It affects your entire family, who must adjust to their “new normal.” As a caregiver, your days are consumed with making phone calls, going to doctors’ appointments, managing therapies, giving medicine, advocating, and caring Continue Reading...
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Advocacy

Pediatric Palliative Care Coalition plays a key role in initiating and implementing systemic change through legislative action and advocacy work. We meet with and inform Pennsylvania legislators about the importance of access and availability, education and funding for palliative and hospice services for children. In addition, our goal is to ensure that future legislation will encompass positive changes and much-needed Continue Reading...
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Q & A

Q: What does “Pediatric Palliative Care” mean? A: Pediatric palliative care, often called “supportive care” is a relatively new concept that has different meanings to different people and institutions. Quality of living and control of pain are generally top priorities. Ideally, it means comprehensive, family-centered, humane care for a seriously ill child and his (her) family from the moment of Continue Reading...
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Terminology

Definitions Glossary/Terminology Acronyms and Terms Used in Pediatric Palliative and Hospice Care Definitions Pediatric Palliative Care (PPC) Developed by Children’s Hospice & Palliative Care Coalition’s Professional Advisory Committee, 2007 World Health Organization Definition of Palliative Care Palliative care is an approach that improves the quality of life of patients and their families facing the problem associated with life-threatening illness, through Continue Reading...
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Resource Links

For Pennsylvania resources, please visit the PA Resource Map Planning Guides for End-of-Life Choices: Voicing My Choices – Planning guide for adolescents and young adults; Five Wishes American Academy of Hospice and Palliative Medicine (AAHMP) AAHMP – Palliative Doctors American Academy of Pediatrics – Hospice and Palliative Medicine Casey Cares Foundation Center to Advance Palliative Care (CAPC) Children’s Hospice International Circle Continue Reading...
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Education Opportunities

PPCC believes in education that supports the concept and practice of children’s hospice and palliative care by providing seminars and workshops responsive to the educational needs of our community of caregivers, both families and professionals. Go to the Calendar to find the next event. We invite you to read our Conference Notes. PPCC Events 3rd Annual Statewide PPCC Conference – Continue Reading...
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