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Pediatric Palliative Care Coalition (PPCC) wants children, adolescents and teens who are seriously ill to have access to the life-enhancing services of palliative and hospice care. This means ensuring that providers across the spectrum fully understand the benefits and how to provide pediatric palliative care.
PPCC has been approaching the situation in these ways:
3. Providing information and resources to healthcare providers,
families and caregivers on how to advocate for children.
Announcing the NEW! PPC Advocacy Webinar Series
The Palliative Care and Hospice Education and Training Act (PCHETA) is bipartisan federal legislation designed to grow and train the palliative care and hospice workforce as they address end-of-life concerns.
Concurrent care is for all children with a life-limiting diagnosis to continue to receive curative or life-prolonging treatment along with hospice care.
Helpful resources:
- PPCC Concurrent Care Brief
Alliance for Care at Home
- Concurrent Care Information and Toolkit
- Your Child's Health Care and the Affordable Care Act - Concurrent Care
- Pediatric End-of-Life Care Research -Federal Concurrent Care
Contact PPCC for more information.
CAPC Policy Matters
Center to Advance Palliative Care collaborates with coalitions and partner organizations to educate stakeholders on palliative care’s value and how policy change could improve access and outcomes.
ICPCN Advocacy
International Children's Palliative Care Network hopes that the impact of our advocacy will be to increase access to children’s palliative care for all children and their families who need it, regardless of where they live, what condition they have, how old they are, how much money they have, their gender, race or religion.
NCHPC Pediatric Policy Agenda
The Pediatric Division of the National Coalition for Hospice and Palliative Care (NCHPC) serves as a unifying and strategic voice, working to build consensus among national organizations committed to advancing equitable, high-quality pediatric palliative and hospice care.
Patient Quality of Life - Policy and Legislation
The Patient Quality of Life Coalition (PQLC) advances a consensus-based agenda to improve and expand access to high-quality palliative care. PQLC priorities focus on four key areas: 1) awareness & education 2) workforce & training 3) research & innovation 4) access & delivery
Pediatric End-of-Life Care Research Group Website
Celebrating over a decade of providing essential evidence and resources for clinicians, administrators, policy makers, researchers, and advocates supporting children and their family in pediatric hospice and concurrent hospice care. State Concurrent Care Information
Federal Concurrent Care Information
PPCC is committed to increasing awareness to advance pediatric palliative and hospice care. To become involved with advocacy for pediatric palliative and hospice care, contact Betsy Hawley, PPCC Executive Director.
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.
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