PPCC Toolkits provide resources for families and caregivers. Pediatric palliative care is the active, total approach to care, embracing physical, emotional, social and spiritual elements. It focuses on enhancement of the quality of life for the child and support for the family. It’s important to have resources that allow medically fragile children to live their lives as fully as possible and for families and caregivers to have tools at their fingertips. PPCC Toolkits can provide that extra layer of support. PPCC is developing new topics including Bereavement, and Family Support. Look for these soon.

Sibling Grief and Bereavement

This PPCC Toolkit has been developed to specifically address the needs and concerns of children and teens who have experienced the death of their sibling with medical complexities. We invite you to explore our resources.

Sibling Support

PPCC and Courageous Parents Network have partnered to bring as many resources together as possible to help parents, caregivers, and medical professionals give that special attention to siblings who live and share their lives with a brother or sister with medical complexities…

Care Plan Book

The Pediatric Palliative Care Coalition (PPCC) is pleased to provide this Care Plan Book with the hope that it will make the job of a caregiver a little bit easier. We understand how overwhelming and difficult that task can be…

Caring Conversations

This information will help caregivers and families ask certain questions to learn if it is time to start a conversation about hospice or palliative care.   The information has been modified so that families can ask similar questions of medical professionals…

Creative Expressions

In this toolkit you will find activities in Art, Music and Play. You can use these at home, on trips, or in the hospital. They are created by professionals in the pediatric field and not only are they fun, they also promote movement, self-expression and fine motor skills…

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PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.

The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization.  Donations are tax-deductible according to the IRS’s rules and regulations.  The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.