Firefly Chat

The PPCC Firefly Chat is a series of interactive virtual discussions - FREE of charge - that explore issues facing the pediatric palliative care community in PA and beyond.

Join us for the next Firefly Chat:
March 13, 2024

Interdisciplinary Spiritual Care with Patients and Families

Click HERE for more information.
Click HERE to register.
Firefly Chats are always FREE, but registration is required.

To help "light the way" for families, caregivers and care providers, consider a donation to PPCC to help fund the Firefly Chat Series. Donate HERE.

Firefly Chat - March 13, 2024
12:00PM - 1:00PM EST

Interdisciplinary Spiritual Care with Patients and Families
Click HERE to register.

How do you live fully at end of life? Offering whole-person and family-centered care is the aim of the Sunflower Pediatric Team. Join a Board Certified Chaplain, Registered Nurse, Licensed Social Worker and Parents of a Sunflower child to dialogue about the importance of addressing spirituality at end of life. The objectives of the Firefly Chat will focus on:

      1) the importance of offering spiritual support to all individuals even those who identify as “not religious”
      2) the importance of all health providers to offer general spiritual support
      3) examples of spiritual support

Presenters:

Rev. Rose Baer, BSN, MDiv, BCC, is a board-certified chaplain who offers community based spiritual support to individuals with serious illness and their families. She works on the Sunflower Hospice and Palliative Team and the CHOICES Palliative and Supportive Care at Home Team at Hospice & Community Care. Rose is an ordained minister who describes her faith as expansive and open and her spirituality as dynamic and grounded in love and the beauty of the world. She is committed and passionate about meeting the spiritual needs of patients and families.

Teresa Lee, RN, CHPN, CHPPN, is a registered nurse for the Sunflower Pediatric Program at Hospice and Community Care.  She has cared for pediatric patients with complex medical needs in rehabilitation, home care and hospice.  She is passionate about meeting the needs of pediatric patients and their families, providing skilled compassionate care and supporting families spiritually and emotionally as their child’s disease process progresses.

Ann Pilarte, MSW, LSW, APHSW-C, is a licensed, master level social worker at Hospice and Community Care in Lancaster, PA. Ann holds a certification as a Palliative and Hospice Social Worker by the Social Work Hospice & Palliative Care Network and a multidisciplinary certificate in Pediatric Palliative Care from the Shiley Haynes Institute. She has attended the ELNEC Pediatric Summit. At Hospice and Community Care Ann serves as a co-chair for the LGBTQ+ Resource Team. Ann received her Masters of Social Work from West Virginia University and her Bachelor of Arts in Sociology from Susquehanna University.

Parent Presenters:   Scott and Sherry Fahs, parents of Derrick

Moderator:  

Dana Dombrowski, MSW, LSW -
Social Worker and Psychosocial Program Coordinator at The Children’s Hospital of Philadelphia

Dana Dombrowski graduated from the University of Connecticut in 2003 with a BS in Family Development and a minor in Sociology. She went on to attend graduate school at the University of Pennsylvania where she received her Master’s degree in Social Work in 2005. Upon completion of this program, she obtained her LSW and was hired by The Children’s Hospital of Philadelphia as a Pediatric Oncology Social Worker. She worked in that position specializing in patients with a terminal cancer diagnosis, grief and loss for over 8 years. In 2013, Dana joined CHOP’s palliative care team (PACT Team) as a social worker and the psychosocial program coordinator.

LEARN MOREREGISTER HERE

Firefly Chat Archive

Visualizing Loss - A Collaborative Filmmaking Project - 2 Hour Special Event

Honoring Our Children: Initiating Conversations About Funeral Planning and Memorialization

Finding Joy in Pediatric Palliative Care: Identifying, Capturing and Experiencing Joy as Caregivers of Children with Medical Complexities

More Than Medicine: Using Creative Supports and Therapies to Help Children with Medical Complexities

What Can Bereaved Siblings Teach Us?

The Challenges of Organizing Medical Data

Grief and the Holidays

Let's Talk About Masks: Identifying Barriers and Solutions to Communicating Effectively

Presentation Materials

Stressed But Not Stressed out: Practical Tools for Managing Stress

Presentation Materials

Mindfulness/Gratitude Practices

A Day in the Life of a Caregiver

384 Fox Chapel Road, Pittsburgh, PA 15238 | Contact Betsy Hawley at: betsy@ppcc-pa.org

PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.

The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization.  Donations are tax-deductible according to the IRS’s rules and regulations.  The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.