Firefly Chat

The PPCC Firefly Chat is a series of interactive virtual discussions - free of charge - that explore issues facing the pediatric palliative care community in PA and beyond.

Latest Firefly Chat - What Can Bereaved Siblings Teach Us?

Tuesday, September 13, 2022 — Noon-1:00 PM EST

Parents and medical professionals often worry that siblings “get lost” during the illness.

During this Firefly Chat session, Carol May, RN, MSN, MBA, CHPPN, Director of the Supportive Care Program at UPMC Children’s Hospital of Pittsburgh and bereaved sibling, Kyler Moore explore how the death of his brother affected him and his family.

As always, the Firefly Chat is free of charge.

Click HERE to listen to What Can Bereaved Siblings Teach Us?

Presenters:

Kyler Moore - Bereaved Sibling

Kyler Moore is a bereaved sibling and a Peer Counselor for Camp Wakchazi. Camp Wakchazi is an initiative of the Supportive Care program at UPMC Children’s Hospital, a summer camp dedicated to addressing the needs of bereaved siblings.

Carol May, RN, MSN, MBA, CHPPN
Director, Supportive Care Program - UPMC Children's Hospital of Pittsburgh

Carol May, Director of the Supportive Care Program at UPMC Children's Hospital of Pittsburgh currently serves as the President of the PPCC Board of Directors. Ms. May developed and maintains the Supportive Care Program, which is a pediatric palliative care program that serves patients at CHP and Magee Women’s Hospital for both NICU and perinatal care. The focus of the program is on advanced care planning, decision making support, pain and symptom management, care coordination, end of life care and bereavement services for children with a life threatening or life limiting illness and their families. The Supportive Care program follows patients and families from the time of diagnosis to either death or recovery.  The program offers bereavement services to both parents and siblings for a minimal of 24 months. Ms. May received her Bachelor of Science in nursing from Carlow University and a Master Degree in Nursing Administration and Master Degree in Business Administration from Duquesne University. Ms. May is a certified pediatric palliative care nurse.

Moderator:

Dana Dombrowski, MSW, LSW
Social Worker and Psychosocial Program Coordinator
The Children’s Hospital of Philadelphia

Dana Dombrowski graduated from the University of Connecticut in 2003 with a BS in Family Development and a minor in Sociology. She went on to attend graduate school at the University of Pennsylvania where she received her Master’s degree in Social Work in 2005. Upon completion of this program, she obtained her LSW and was hired by The Children’s Hospital of Philadelphia as a Pediatric Oncology Social Worker. She worked in that position specializing in patients with a terminal cancer diagnosis, grief and loss for over 8 years. In 2013, Dana joined CHOP’s palliative care team (PACT Team) as a social worker and the psychosocial program coordinator.

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A Day in the Life of a Caregiver

384 Fox Chapel Road, Pittsburgh, PA 15238 | Contact Betsy Hawley at: betsy@ppcc-pa.org

PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.

The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization.  Donations are tax-deductible according to the IRS’s rules and regulations.  The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.