Pediatric palliative care, sometimes called supportive care, can have different meanings to different people and different institutions.
At its core, pediatric palliative care is comprehensive, compassionate care for a seriously ill child and their family from the moment of diagnosis to a cure — or to end-of-life if a cure cannot be found. Palliative care helps the child find relief from their symptoms and experience enhanced quality of life, while also providing emotional and bereavement support to the child’s family. It is managed by an interdisciplinary team of providers, often with a care coordinator who will help to include the family and caregivers at every stage.
PPCC has compiled a list of answers to frequently asked questions about pediatric palliative care. This page covers a wide range of topics, including how to determine whether palliative care is right for your child, who provides it, where your child can receive it, and much more.
“Pediatric palliative care was the most important part of our journey with our son, Jack. Support, hope, love, answers, and a kind of understanding that no one else can provide were the guiding lights that got us through the hardest time of our life.”
— Cassie Grassmyer, Bereaved Mother and Educator at St. Francis University
* Pediatric Palliative Care
* Pediatric Palliative Care Team
* Pediatric Palliative Care and Insurance
* Advocating for Your Child
* Pediatric Hospice
* Palliative Care vs. Hospice Care
* PPCC Resources and Additional Information
Expand the sections below to read more about these important topics and find answers to specific questions.
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.