Lighting the way for children with medical complexity
The LEARN initiative is specific to the pediatric palliative and hospice care community in Pennsylvania with the participation of healthcare providers, medical professionals, therapists, clergy, caregivers and parents.
Legislation Education Advocacy Research Networking
Regular virtual LEARN events serve to advance the mission of PPCC with these activities. PPCC welcomes those interested in pediatric palliative and hospice care in Pennsylvania.
To be a part of the LEARN Initiative, contact PPCC Executive Director, Betsy Hawley.
Next LEARN Meeting: September 9 at 4:00PM EST.
Registration opens in August.
LEARN Dates for 2024:
February 12 ~ May 13 ~ September 9 ~ November 11
Current LEARN Areas of Emphasis:
PA Family Care Act - Allows family members to provide critical care and rehab services to elderly loved ones at home, without risking their jobs and financial security.
PA POLST Act - Senate Bill 631 provides a legal basis for POLST forms to be used by medical professionals across all health care settings for seriously ill patients who voluntarily wish to specify the treatment they desire to receive.
PA POLST Education - Free continuing education course designed for Physicians, Physician Assistants, Nurse Practitioners, Nurses and other healthcare professionals who are involved with end-of-life care.
Monday, May 13, 4:00-5:00pm
Meeting focus - ADVOCACY with special guests:
PA Rep. Dan Miller
Democratic Whip, 42nd District / Allegheny County, the sponsor of the PA Family Care Act.
Dan will lead a discussion about the PA Family Care Act and how to support this groundbreaking initiative for families and caregivers.
Kristin Huibregtse
Executive Director of the Always B Smiling Foundation where they strive to support children, families and caregivers with life challenges by offering support and experiences that inspire smiles.
The LEARN Initiative is a program of the Pediatric Palliative Care Coalition. As a part of this initiative, you will have the opportunity to explore Legislative, Education, Advocacy, Research and Networking opportunities to ensure equal access to pediatric palliative care resources of the highest standard throughout the state of Pennsylvania, so that all children facing serious illness and their families receive the care they deserve.
Meeting Focus: Use of the POLST and Out of Hospital DNRs with pediatric patients and an Environmental Scan aimed at pediatric palliative and hospice care resources in Pennsylvania. Click HERE to view a recording of the meeting. Click on View Here button for highlights from the meeting.
Meeting Focus: Resources in the "Plain" Communities for children with rare genetic disorders and building bridges between culture and medicine; PA Environmental Scan. Click HERE to view a recording of the meeting. Click on the View Here button for highlights from the meeting.
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.
