Lighting the way for children with medical complexity
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Caring for a child with medical complexities impacts the entire family. These children often require advanced care, leaving caregivers with little time or energy to seek support, while also managing other family responsibilities. Resources and support are needed for everyone involved, yet sometimes it feels like those are impossible to find.
Let us help you! Our program is designed to connect families of children with both complex medical conditions (CMC) and intellectual and developmental disabilities (IDD) to reliable resources, easing the burden of navigating these challenges alone.
It is comprehensive care for seriously ill children and their families—from diagnosis to cure or end-of-life. Learn more about improving quality of life and the compassionate care everyone deserves.
As the saying goes, parents know best. This is why PPCC needs your voice! Learn more about joining the Parent Advisory Council and help us advocate for the kids who need it most.
More information is coming soon. If you are interested in being a part of this group, please contact Rose Flowers at rose@ppcc-pa.org
PPCC strives to provide comprehensive, up-to-date information on pediatric palliative care/hospice options, as well as support organizations and self-help groups in Pennsylvania and the country.
PPCC is committed to education that promotes the understanding and practice of children’s palliative and hospice care. Our learning opportunities aim to meet the educational needs of caregivers.
LANTERN is a pilot initiative that provides resources to families of children with both complex medical conditions (CMC) and intellectual and developmental disabilities (IDD) in Pennsylvania. Our team starts by listening to the unique needs of the family through regular, supportive communication. We then advocate for family by helping them navigate challenging systems and tailor connections to services that fit their needs. LANTERN aims to educate families on resources and opportunities that are available to them while building a growing network of partners.
For those already enrolled, please log in to check out specially curated resources and highlights. We are still enrolling new participants, so please contact Krista Burgbacher, Program Coordinator, at krista@ppcc-pa.org if you are interested in participating.
Are we missing something?
Recommend a resource!Please contact: Krista Burgbacher MS, CCLS
Resource Matching Program Coordinator | krista@ppcc-pa.org
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.
