When a child in the family is dealing with medical complexities, the entire family is affected with each member taking on different responsibilities.
Siblings, whether older or younger, have unique and distinct roles which can fluctuate as situations with the child and family change. Understanding siblings of children with medical complexities and how they interact in the family is an important part of the journey.
PPCC and Courageous Parents Network have partnered to bring as many resources together as possible to help parents, caregivers, and medical professionals give that special attention to siblings who live and share their lives with a brother or sister with medical complexities. It takes a team to work with a child with medical complexities, and that same sense of teamwork should be extended to support the siblings as they navigate the ups, downs, setbacks, and joys that make up their day to day lives.
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.