Lighting the Way in Pediatric Palliative Care.

Pediatric Palliative Care Coalition (PPCC) is a Pennsylvania-based statewide coalition providing information and resources for families of children with life-limiting conditions, and for the medical providers who support them.

The resources provided by PPCC are identified or created by dedicated volunteers, including health care professionals, parents, caregivers and community members with firsthand experience caring for children with life-limiting illnesses. If you are a medical provider, a parent or a caregiver, the resources on this website are curated by and for individuals like you. 

PPCC’s website holds practical toolkits, informative webinars, extensive external resources, advocacy information, and more — all designed to Light the Way in pediatric palliative care.

Click HERE to join the PPCC mailing list.

Watch our overview video

Mission

Provide resources to families, volunteers, and medical professionals caring for children with life-limiting illnesses.

Vision

Build a future where all children diagnosed with life-limiting conditions in Pennsylvania have access to world-class palliative, hospice and end-of-life care.

What is Pediatric Palliative Care?

“Pediatric Palliative care is specialized medical care for children with serious illnesses. It focuses on providing relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. The goal is to improve quality of life for both the child and the family…”

– Center to Advance Palliative Care (CAPC)

Learn more

PPC Webinar: Thursday, March 21

Navigating Facts and Values: Palliative Care in the Face of Significant Distress

All PPC Webinars:
12:00PST/ 1:00MST/ 2:00CST/ 3:00EST

Archived Webinars are available for purchase.

Click HERE to register.

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PPCC Firefly Chat - Wednesday, March 13

12-1 PM EST
Interdisciplinary Spiritual Care for Patients and Families

The PPCC Firefly Chat is a series of interactive virtual discussions that explore issues facing the pediatric palliative care community in PA and beyond. FF Chats are free, but registration is required.


Click HERE to register.

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PPCC Newsletter - NeuroJourney.org

Keep up to date with PPCC resources, events and topical information created for medical professionals and families/caregivers who are working with children with medical complexity.

Click HERE for latest newsletter.

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Pennsylvania LEARN Initiative Meeting - May 13

LEARN, a PPCC program, helped families and medical professionals improve palliative care services for children with serious illness throughout Pennsylvania. All pediatric palliative and hospice care stakeholders in Pennsylvania are invited to be a part of this group.

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2024 PPC Webinar Series

Registration Discounts are Available

There will be 10 webinars with topics focused on pediatric palliative and hospice care. CE is available for nurses and social workers. Discounts are available for groups and multiple webinar purchases.

Click HERE for the 2024 calendar.

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Help Us Light the Way with a Donation to PPCC!

Please consider a donation to PPCC to help families and care providers of children diagnosed with a potential life threatening illness find hope, healing and light in the darkness. Click the button below to read about a special family who benefited from pediatric palliative care.

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President of the PPCC BOD, Carol May, Receives the Ilene Beal Award

Congratulations to Carol May, RN, MSN, MBA, CHPPN who is the recipient of the 2024 Ilene Beal Award from Courageous Parents Network. This award honors a pediatric provider who provides exceptional family-centered care in circumstances of serious childhood illness.

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NHPCO Facts and Figures 2023 Edition

NHPCO has released the Facts and Figures report which includes a comprehensive view of pediatric hospice and palliative care across the US. PPCC Executive Director, Betsy Hawley, was a member of the work group and a contributor to this publication.

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PPCC Lightning Bug App

The PPCC Lightning Bug app is a tool that gives caregivers access to a suite of indispensable tools to help organize health care data.


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PPC Archived Webinars Now Available

Since 2018, the Pediatric Palliative Care Webinar Series has been providing high quality educational programming for the entire interdisciplinary team. Archived recordings are now available for purchase.

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PPCC Toolkits

PPCC Toolkits are designed to provide resources for families, caregivers and professionals. Pediatric palliative care is the active, total approach to care, embracing physical, emotional, social and spiritual elements.

Check out the new Sibling Support Toolkit.

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When a Child Dies: Planning Acts of Love & Legacy

PPCC in collaboration with the Funeral Service Foundation created this guide to help families walk the difficult journey following the death of a child. Copies can be ordered free of charge from FSF.

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What is Pediatric Palliative Care? - Check out the newest PPCC online resource

This newest online PPCC resource is a list of frequently asked questions and answers about pediatric palliative and hospice care.
Topics include:
Pediatric Palliative Care, Pediatric Palliative Care Team, Pediatric Palliative Care and Insurance, Advocating for Your Child,
Pediatric Hospice, Palliative Care vs. Hospice Care,

View New PPCC Resource - What is Pediatric Palliative Care?

384 Fox Chapel Road, Pittsburgh, PA 15238 | Contact Betsy Hawley at: betsy@ppcc-pa.org

PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.

The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization.  Donations are tax-deductible according to the IRS’s rules and regulations.  The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.