Pediatric Palliative Care Coalition (PPCC) provides information, education and resources for families of children with life-limiting conditions, and for the medical providers and professionals who support them.
If you are a provider, a parent or a caregiver, the resources on this website are curated by and for individuals like you. PPCC’s website holds practical toolkits, educational webinars, extensive external resources, advocacy information, and more — all designed to Light the Way in pediatric palliative and hospice care.
REGISTER NOW for the 2025 PPC Webinar Series: Click HERE.
Provide resources to families, volunteers, and medical professionals caring for children with life-limiting illnesses.
Build a future where all children diagnosed with life-limiting conditions in Pennsylvania have access to world-class palliative, hospice and end-of-life care.
“Pediatric Palliative care is specialized medical care for children with serious illnesses. It focuses on providing relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. The goal is to improve quality of life for both the child and the family…”
– Center to Advance Palliative Care (CAPC)
Addressing Health Equity and Racism in Pediatric Serious Illness
Khaliah Johnson, MD
Arika Patneaude, MSW, LICSW, APHSW-C
All PPC Webinars:
12:00PST/ 1:00MST/ 2:00CST/ 3:00EST
Archived Webinars are available for purchase.
Click HERE to register.
Keep up to date with PPCC resources, events and topical information created for medical professionals and families/caregivers who are working with children with medical complexity.
Click HERE for latest newsletter.
Within these pages, get a glimpse of PPCC programs and initiatives, along with the impact PPCC has made by working together with parents, medical professionals, volunteers, and donors to provide resources and support for those caring for children with medical complexity.
Art Therapy in Pediatric Palliative Care: Creative Coping
The PPCC Firefly Chats are free, but registration is required.
Click HERE to watch the recording from the latest Firefly Chat.
This new program is being developed to connect parents and caregivers of children with complex medical conditions (CMC) and intellectual and developmental disabilities (IDD) with reliable resources.
If you are a parent or provider in Pennsylvania, click below - we want to learn more from you!
Register for multiple webinars!
There will be 10 webinars with topics focused on pediatric palliative and hospice care. CE is available for nurses and social workers. Discounts are available for groups and multiple webinar purchases.
Click HERE for the 2025 calendar.
LEARN, a PPCC program, helps families and medical professionals improve palliative care services for children with serious illness throughout Pennsylvania. All pediatric palliative and hospice care stakeholders in Pennsylvania are invited to be a part of this group.
Be a Champion for Self-Advocacy This toolkit includes information, resources and downloadable guides to help caregivers, children and adolescents with medical complexity communicate on their own behalf regarding preferences and decisions.
Please consider a donation to PPCC to help families and care providers of children diagnosed with a potential life threatening illness find hope, healing and light in the darkness.
Read about a family's journey in the PPCC Impact Report.
Click HERE.
This PPCC Toolkit features information, resources and downloadable guides to help caregivers, children and adolescents with medical complexity communicate on their own behalf regarding preferences and decisions for healthcare plans and medical procedures.
PPCC would like to thank our donors, members, and grantors for their generous support:
McElhattan Foundation • Jack Buncher Foundation • Kanarek Family Foundation
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.
