Pediatric Palliative Care Coalition (PPCC) is a Pennsylvania-based statewide coalition providing information and resources for families of children with life-limiting conditions, and for the medical providers who support them.
The resources provided by PPCC are identified or created by dedicated volunteers, including health care professionals, parents, caregivers and community members with firsthand experience caring for children with life-limiting illnesses. If you are a medical provider, a parent or a caregiver, the resources on this website are curated by and for individuals like you.
PPCC’s website holds practical toolkits, informative webinars, extensive external resources, advocacy information, and more — all designed to Light the Way in pediatric palliative care.
Provide resources to families, volunteers, and medical professionals caring for children with life-limiting illnesses.
Build a future where all children diagnosed with life-limiting conditions in Pennsylvania have access to world-class palliative, hospice and end-of-life care.
“Pediatric Palliative care is specialized medical care for children with serious illnesses. It focuses on providing relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. The goal is to improve quality of life for both the child and the family…”
– Center to Advance Palliative Care (CAPC)
REALIGN-RESPOND-REPAIR: Responding to Discrimination with your Interdisciplinary Team
All PPC Webinars:
12:00PST/ 1:00MST/ 2:00CST/ 3:00EST
More information and registration for this FREE event is coming soon!
The PPCC Firefly Chat is a series of interactive virtual discussions that explore issues facing the pediatric palliative care community in PA and beyond.
Please consider a donation to PPCC to help families and care providers of children diagnosed with a potential life threatening illness find hope, healing and light in the darkness. Click the button below to read about a special family who benefited from pediatric palliative care.
LEARN, a program of PPCC, helps families and medical professionals improve palliative care services for children with serious illness throughout Pennsylvania. All pediatric palliative and hospice care stakeholders in Pennsylvania are invited to the meeting on Nov. 13 at 4:00 EDT. Click on the LEARN MORE button.
NHPCO has released the Facts and Figures report which includes a comprehensive view of pediatric hospice and palliative care across the US. PPCC Executive Director, Betsy Hawley, was a member of the work group and a contributor to this publication.
The PPCC Lightning Bug app is a tool that gives caregivers access to a suite of indispensable tools to help organize health care data.
Since 2018, the Pediatric Palliative Care Webinar Series has been providing high quality educational programming for the entire interdisciplinary team. Archived recordings are now available for purchase.
PPCC Toolkits are designed to provide resources for families, caregivers and professionals. Pediatric palliative care is the active, total approach to care, embracing physical, emotional, social and spiritual elements.
Check out the new Sibling Support Toolkit.
PPCC in collaboration with the Funeral Service Foundation and the Greater Illinois Pediatric Palliative Care Coalition created this guide to help families walk the difficult journey following the death of a child. Copies can be ordered free of charge from FSF.
This PPCC Toolkit has been developed to specifically address the needs and concerns of children and teens who have experienced the death of their sibling with medical complexities. PPCC is proud to offer information about what siblings might feel and experience, activities that allow for expression of emotions and legacy creation, and additional resources to encourage and guide conversations to aid in comfort, healing, and growth. The PPCC Sibling Grief & Bereavement Toolkit is a part of the overall Sibling Support Toolkit.
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.