Lighting the Way in Pennsylvania.

Pediatric Palliative Care Coalition (PPCC), a PA-based statewide coalition, is a volunteer group of professionals, parents, and community members who provide information and resources for families with children with life-limiting conditions.

The PPCC website is here to help medical providers, families, and caregivers address these challenges and struggles by providing PPCC Toolkits, PPC webinar series, Firefly Chats, community and regional events, helpful resource links, relevant videos, and advocacy information.

We invite you to explore the website and see how PPCC is lighting the way!

Watch our overview video

Mission

PPCC’s mission is to provide resources to families, volunteers, and medical professionals caring for children with life-limiting illnesses.

Vision

A future where all children diagnosed with life-limiting conditions in Pennsylvania will have access to world-class palliative, hospice and end-of-life care.

What is Pediatric Palliative Care?

“Pediatric Palliative care is specialized medical care for children with serious illnesses. It focuses on providing relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. The goal is to improve quality of life for both the child and the family…”

– Center to Advance Palliative Care (CAPC)

PPCC Toolkits

PPCC Toolkits are designed to provide resources for families, caregivers and professionals. Pediatric palliative care is the active, total approach to care, embracing physical, emotional, social and spiritual elements.

Check out the new Sibling Support Toolkit.

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PPCC Firefly Chat

To listen to the latest Firefly Chat, The Challenges of Organizing Medical Data, Click HERE.

The PPCC Firefly Chat is a series of interactive virtual discussions that explore issues facing the pediatric palliative care community in PA and beyond.  

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PPCC Lightning Bug App

The PPCC Lightning Bug app is a tool that gives caregivers access to a suite of indispensable tools to help organize health care data.


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When a Child Dies: Planning Acts of Love & Legacy

The Funeral Service Foundation funded this guide and created it in partnership with the Collaborative of Pediatric Palliative Care Coalitions and dozens of bereaved parents, and healthcare and bereavement professionals. Copies can be ordered free of charge.

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PPCC Newsletter

Keep up to date with PPCC resources, events and topical information created for medical professionals and families/caregivers who are working with children with medical complexities.

Click HERE for latest newsletter:
Summer Spotlight - Sibling Bereavement Program

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PPC Webinar Series

Register today for the 2022 Webinar Series.

July PPC Webinar:
Tuesday, July 19, 2022
12:00PST/ 1:00MST/ 2:00CST/ 3:00EST

Creating Legacy: Developing End of Life Protocols Following the Death of a Child

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Sibling Support Toolkit - Check out the most recent PPCC resource

PPCC and Courageous Parents Network have partnered to bring as many resources together as possible to help parents, caregivers, and medical professionals give that special attention to siblings who live and share their lives with a brother or sister with medical complexities. It takes a team to work with a child with medical complexities, and that same sense of teamwork should be extended to support the siblings as they navigate the ups, downs, setbacks, and joys that make up their day to day lives.

View New Sibling Support Toolkit

384 Fox Chapel Road, Pittsburgh, PA 15238 | Contact Betsy Hawley at: betsy@ppcc-pa.org

PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.

The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization.  Donations are tax-deductible according to the IRS’s rules and regulations.  The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.