Pediatric Palliative Care Coalition (PPCC), a PA-based statewide coalition, is a volunteer group of professionals, parents, and community members who provide information and resources for families with children with life-limiting conditions.
The PPCC website is here to help medical providers, families, and caregivers address these challenges and struggles by providing PPCC Toolkits, PPC webinar series, Firefly Chats, community and regional events, helpful resource links, relevant videos, and advocacy information.
We invite you to explore the website and see how PPCC is lighting the way!
PPCC’s mission is to provide resources to families, volunteers, and medical professionals caring for children with life-limiting illnesses.
A future where all children diagnosed with life-limiting conditions in Pennsylvania will have access to world-class palliative, hospice and end-of-life care.
“Pediatric Palliative care is specialized medical care for children with serious illnesses. It focuses on providing relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. The goal is to improve quality of life for both the child and the family…”
– Center to Advance Palliative Care (CAPC)
December 2, 2021 - Virtual event. In conjunction with Reimagine’s Fall 2021 season “Grief, Growth, and Action”, Phoenix Rising explores opportunities to emerge from the ashes and transform from the source of our devastation and loss.
November 16, 2021 – Alternative Strategies to Enhance Access to Pediatric Palliative Care with Conrad Williams, MD, FAAP, FAAHPM; Kristin James, LCPC. This discussion will highlight the challenges to access of PPC services in traditional reimbursement models.
The PPCC Firefly Chat is a series of interactive virtual discussions that explore issues facing the pediatric palliative care community in PA and beyond.
PPCC Toolkits provide resources for families and caregivers. Pediatric palliative care is the active, total approach to care, embracing physical, emotional, social and spiritual elements. New Sibling Toolkit
Keep up to date with PPCC resources, events and topical information created for medical professionals and families/caregivers who are working with children with medical complexities.
PPCC and Courageous Parents Network have partnered to bring as many resources together as possible to help parents, caregivers, and medical professionals give that special attention to siblings who live and share their lives with a brother or sister with medical complexities. It takes a team to work with a child with medical complexities, and that same sense of teamwork should be extended to support the siblings as they navigate the ups, downs, setbacks, and joys that make up their day to day lives.View New Sibling Support Toolkit
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.