Lighting the Way in Pediatric Palliative and Hospice Care

Pediatric Palliative Care Coalition (PPCC) provides information, education and resources for families of children with life-limiting conditions, and for the medical providers and professionals who support them.

If you are a provider, a parent or a caregiver, the resources on this website are curated by and for individuals like you. PPCC’s website holds practical toolkits, educational webinars, extensive external resources, advocacy information, and more — all designed to Light the Way in pediatric palliative and hospice care.

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Father reading to son in hospital bed son in blue hospital gown

Mission

Provide resources to families, volunteers, and medical professionals caring for children with life-limiting illnesses.

Vision

Build a future where all children diagnosed with life-limiting conditions in Pennsylvania have access to world-class palliative, hospice and end-of-life care.

What is Pediatric Palliative Care?

“Pediatric Palliative care is specialized medical care for children with serious illnesses. It focuses on providing relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. The goal is to improve quality of life for both the child and the family…”

– Center to Advance Palliative Care (CAPC)

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Firefly Chat Highlights

Perinatal Palliative Care:
Care Across the Continuum

The PPCC Firefly Chat is a series of interactive virtual discussions with parents and professionals that explore issues facing the pediatric and hospice palliative care community. FF Chats are free, but registration is required.

Click HERE for highlights and to access the video.

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PPC Webinar: Thursday, June 20th

Pediatric to Adult Health Transition for Adolescents with Medical Complexity: The Role of Family and Social Determinants of Health

All PPC Webinars:
12:00PST/ 1:00MST/ 2:00CST/ 3:00EST

Archived Webinars are available for purchase.

Click HERE to register.

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May PPCC Newsletter: Memory-Making and Legacy Building

Keep up to date with PPCC resources, events and topical information created for medical professionals and families/caregivers who are working with children with medical complexity.

Click HERE for latest newsletter.

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Pennsylvania LEARN Initiative

LEARN, a PPCC program, helps families and medical professionals improve palliative care services for children with serious illness throughout Pennsylvania. All pediatric palliative and hospice care stakeholders in Pennsylvania are invited to be a part of this group.

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PPCC and the Collaborative Filmmaking Project

Each of 5 participants created a short film that celebrated the legacy of their child and explored a range of key topics related to their grief journey and experience navigating palliative care for their child.

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2024 PPC Webinar Series

Registration Discounts are Available

There will be 10 webinars with topics focused on pediatric palliative and hospice care. CE is available for nurses and social workers. Discounts are available for groups and multiple webinar purchases.

Click HERE for the 2024 calendar.

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What is Pediatric Palliative Care? - Check out the PPCC online resource

This online PPCC resource is a list of frequently asked questions and answers about pediatric palliative and hospice care.

Topics include:
Pediatric Palliative Care, Pediatric Palliative Care Team, Pediatric Palliative Care and Insurance, Advocating for Your Child, Pediatric Hospice, Palliative Care vs. Hospice Care

View PPCC Resource - What is Pediatric Palliative Care?

PPCC would like to thank our donors, members, and grantors for their generous support:
McElhattan Foundation • Jack Buncher Foundation • Kanarek Family Foundation

Red Serif Type McELHATTAN FOUNDATION logo next to a blue ruled box with JBF JACK BUNCHER Foundation logo next to a Green KANAREK Family Foundation logo

384 Fox Chapel Road, Pittsburgh, PA 15238 | Contact Betsy Hawley at: betsy@ppcc-pa.org

PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.

The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization.  Donations are tax-deductible according to the IRS’s rules and regulations.  The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.