Lighting the Way in Pennsylvania.

Pediatric Palliative Care Coalition (PPCC), a PA-based statewide coalition, is a volunteer group of professionals, parents, and community members who provide information and resources for families with children with life-limiting conditions.

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The new Lightning Bug app equips caregivers with a suite of indispensable tools to manage, store and share information. Our app streamlines a caregiver’s experience by providing them with tools and features meant to assist with their responsibilities.
PPCC Lightning Bug App

The new Lightning Bug app equips caregivers with a suite of indispensable tools to manage, store and share information. Our app streamlines a caregiver’s experience by providing them with tools and features meant to assist with their responsibilities.

2021 PPC Webinar Series

PPCC, GIPPCC, CHPCC, Jacob’s Heart Children’s Cancer Support Services, and the CSU Shiley Institute for Palliative Care have collaborated to offer the PPC Webinar Series to raise the visibility of pediatric palliative care and to build clinicians’ competencies and confidence.

Click HERE for a listing of the entire series.
*Discounts are available for groups and multiple registrations.
*CE are available for nurses and social workers

Monthly Webinar - 2021 Series

September 23, 2021 – Beyond Words: Using Expressive and Integrative Therapies as Communication Tools

with Jenny Goldhammer, MM, MT-BC; John Mark, MD; Lily Rich, PsyD
This webinar will provide an introduction to the broad range of expressive therapy options that can be used as a part of a child’s medical care. Through case examples and sample interventions, the presenters will share ways in which imagery, song, words, and other forms of creativity can help a child process and express feelings related to their health and treatment.
12:00 PST  |  1:00 MST  |  2:00 CST  |  3:00 EST

PPCC Firefly Chat  

Stressed But Not Stressed out: Practical Tools for Managing Stress

Click HERE to listen to the Firefly Chat using the passcode – 5#r7QLpH
Click HERE to view presentation materials.
Click HERE to view Mindfulness/Gratitude Practices.

Let's Talk About Masks: Identifying Barriers and Solutions to Communicating Effectively
Click HERE to listen to the latest Firefly Chat using the passcode - PY$zL3BT
Click HERE to view presentation materials.

The PPCC Firefly Chat is a series of interactive virtual discussions that explore issues facing the pediatric palliative care community in PA and beyond.

Latest News


See list below for PPCC 2021 Newsletters.

  • PPCC 2021 Newsletters
    Aug Newsletter - Click HERE   Back to School
    May Newsletter - Click HERE   Transitioning to Adult Care
    Apr Newsletter - Click HERE    Advance Care Planning for Pediatric Patients
    Feb Newsletter - Click HERE   Wellness & Mindfulness - Coping Skills for Children and Teens
    Jan Newsletter - Click HERE    Making Wishes Come True
  • COVID-19 Response & ResourcesClick HERE to be directed to the PPCC Covid-19 Resources page.
  • Courageous Parents Network Blog  – Click HERE to view posts for parents and professionals
    Courageous Parents Network - In the Room - Live conversations on topics parents and providers really wonder about.
    Click HERE for more information.
  • E-Journal - NHPCO Resource: Disparities and Inequities in Pediatric/Palliative/Hospice Care, Aug 2021
    Click HERE
  • Pedipal Podcast Series Click HERE

What is Pediatric Palliative Care?

“Pediatric palliative care is specialized medical care for children with serious illnesses. It focuses on providing relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. The goal is to improve quality of life for both the child and the family. Pediatric palliative care is provided by a team of doctors, nurses and other specialists who work together with a child’s other doctors as an extra layer of support. It is appropriate at any age and at any stage of an illness and can be provided along with treatment meant to cure.”   – Center to Advance Palliative Care (CAPC)

PPCC Mission

PPCC’s mission is to provide resources to families, volunteers, and medical professionals caring for children with life-limiting illnesses.

PPCC Vision

A future where all children diagnosed with life-limiting conditions in Pennsylvania will have access to world-class palliative, hospice and end-of-life care. Our goal is to provide a clearer path for children and their families coping with difficult, life-altering experiences.

Contact Us

Betsy Hawley, Executive Director
To send an email, click HERE.

More To Explore

PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.

384 Fox Chapel Road
Pittsburgh, PA 15238