Pediatric Palliative Care Coalition (PPCC) provides information, education and resources for families of children with life-limiting conditions, and for the medical providers and professionals who support them.
If you are a provider, a parent or a caregiver, the resources on this website are curated by and for individuals like you. PPCC’s website holds practical toolkits, educational webinars, extensive external resources, advocacy information, and more — all designed to Light the Way in pediatric palliative and hospice care.
Provide resources to families, volunteers, and medical professionals caring for children with life-limiting illnesses.
Build a future where all children diagnosed with life-limiting conditions in Pennsylvania have access to world-class palliative, hospice and end-of-life care.
“Pediatric Palliative care is specialized medical care for children with serious illnesses. It focuses on providing relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. The goal is to improve quality of life for both the child and the family…”
– Center to Advance Palliative Care (CAPC)
3 Webinar Series on Ethics in Perinatal and Neonatal Care
9amPT/ 10am MT/ 11am CT/ 12pm ET
Registration is open.
This new program is designed to connect Pennsylvania parents and caregivers of children with complex medical conditions (CMC) and intellectual and developmental disabilities (IDD) with reliable resources.
If you are a parent or provider in Pennsylvania, click below.
Keep up to date with PPCC resources, events and topical information created for healthcare professionals and families/caregivers working with children with medical complexity.
Click HERE for latest newsletter.
Living in the Gray: A Case Series of "Everything But" for the Chronically, Critically Ill Child and Their Families
Archived Webinars are available for purchase.
Navigating the Grief of Unfathomable Loss
Listen to this Remembering a Life podcast featuring PPCC Executive Director, Betsy Hawley along with Kristin James.
Managing Pediatric Complex Care in the Home Setting
The PPCC Firefly Chats are free, but registration is required.
Click HERE to view the latest Firefly Chat.
LEARN, a PPCC program, helps families and medical professionals improve palliative care services for children with serious illness throughout Pennsylvania. All pediatric palliative and hospice care stakeholders in Pennsylvania are invited to be a part of this group.
Learn more about PPCC programs and initiatives, along with the impact PPCC has made by working together with parents, medical professionals, volunteers, and donors to provide resources and support for for children with medical complexity and their families.
Register for multiple webinars!
There will be 10 webinars with topics focused on pediatric palliative and hospice care. CE is available for nurses and social workers. Discounts are available for groups and multiple webinar purchases.
Click HERE for the 2025 calendar.
This PPCC Toolkit features information, resources and downloadable guides to help caregivers, children and adolescents with medical complexity communicate on their own behalf regarding preferences and decisions for healthcare plans and medical procedures.
PPCC would like to thank our donors, members, and grantors for their generous support:
McElhattan Foundation • Jack Buncher Foundation • Kanarek Family Foundation
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.
